Anyone with chronic illness knows they have their ups and downs, but how much of the reality of how we feel do we really share with friends, family and healthcare professionals? 

When asked every quarter about my mental health, I usually just say, “I’m fine, thank you.” I don’t elaborate about the numerous sleepless nights or the feelings of worthlessness that lurks daily, inbetween and during, things I do. I highlight the positive and sweep away the negative, because in all honesty I am playing a game to enable myself to remain in the status quo. 

For me personally, change is hard, I dont adapt as well as I think I should or it appears I need to in order to meet the demands of everyday life and I have no hope of better circumstances. Hope is a currency of youth I simply depleted long before I should have felt aged. That is the tragedy and effect of long hours of worry and mental anguish. From time to time I do see a glimmer of hope, but it’s usually a faraway flash and translates to acceptance of my ever growing limitations.

Under the medically compliant and effusively practical surface there lurks a deep and dark well of dread, doom and despondency. I’m doing well if I ignore it most of the day, but after days it becomes impossible to carry on regardless. Superimpose on that the chest pain, shortness of breath, current soft tissue injury threatening to become infected and the anaemia making me tired and anxious, and it just seems too much to cope with at any given moment.

So, I hit the books and thank heavens I don’t face all this alone and am living with the ying to my yang. I try to recapture that feeling of once being free of any burdens of expectations and simply living in the moment and enjoying my life, which is the point of being here as much as we are here to help each other, but somehow I overlooked the simplest of pleasures, whilst trying to cope with the multiple doubts of my existence.

Some say I over think things, some say I cannot see the wood for the trees but I can’t stop and I just want to sleep for a thousand years.